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Saturday, July 27, 2013
Sick & Tired of being Sick & Tired..
Sunday, July 21, 2013
Genetic Counseling......
First things first, my mother and I checked in for our appointment waiting for our black buzzer thing to vibrate to let us know it was our turn as we waited I looked around the room and noticed something.. There were several families sitting there quietly, if I had to guess I would say they're was a pair of sisters, a mother & daughter, a mother with her adult children and a father & daughter. Missing from my group was my sister because she was working and my brother because since my mother was diagnosed he's been in some sort of denial about the fact she's dying. One thing we probably all had in common was the sadness we all felt that seemed to take over the waiting area. When we finally went in the nurse asked about are family medical history and proceeded to explain to us that she would be drawing my mother's blood and testing it for a mutation called CDH1, if she tested positive in 4-6 weeks we would then discuss how that would affect my siblings and I and what we would have to do next. So now the hurry up and wait game begins.
Friday, July 12, 2013
Chemo again...
Thursday, July 11, 2013
Don't be afraid...
Tuesday, July 9, 2013
I will....
Monday, July 8, 2013
What's the Weight & Date?
MRI Discovered she has a brain aneurysm.
9/03/2013 117 Chemo 15 resumed
9/16/2013 115 Chemo 16
Resources
If you don't already get CURE magazine you really should subscribe, it shares cancer updates and strides being made in Cancer research everyday. I've attached a link for anyone interested in a free subscription.
https://cur.magserv.com/cgi-bin/subscribe?qt=new
Reliablehome.com (Illinois)
provides medical products for care at home: incontinence supplies,,hospital beds,bath chairs,
Wheelchairs,walkers
Ph:847.566.0800
Fx.847.566.0876
Contact person: Judy
Sunday, July 7, 2013
Laughter cures everything...almost.
Google it!!!
Saturday, July 6, 2013
Top 10 Stupid things people say....
(to which I usually feel like saying
"So why don't you go there first and let us know what it's like.") but my mom would probably kill me if I did.:-)
To poop or not too poop......
Home Hydration {the lifesaver}.....
Waiting for Chemo......
After the Aloxi she was given decadron(steroid) and then a drip of Leucovorin and an infusion of oxaliplatin. These are given at the same time and take about two hours.
When those were done she was given an injection of 5FU into her port line followed by an infusion of 5FU over 46 hours. This part of the treatment was given over 46hrs through a small portable pump she was able to take home with her and would have to remember to bring back each and every time she received chemo. The pump is used to give a controlled amount of the drug into your bloodstream over a set period of time. On the third day the home nurse arrived just as it began beeping and removed the bag which only weighed about 2-3lbs, but after 3 days seemed to be weighing my mother down. And that's how mom's chemo that doctors said would likely be indefinite, began.....
You've got the Big C :-(Now what?
Friday, July 5, 2013
Medications or other things to ask your doctor about...
Some of these nutritional supplements may be covered completely by insurance with a Doctors Script. In the state of Illinois BeneProtein & Boost Plus are covered by Medicaid.. If it's not covered in your state I've found this company to be the least expensive to date...
( c-dif is the most serious cause of antibiotic-associated diarrhea and can lead to pseudomembranous colitis, a severe inflammation of the colon, often resulting from eradication of the normal gut flora by antibiotics. Ask your doctor about acyclovir as a first line of defense.
Tuesday, July 2, 2013
The clue
We started all over again MRI, CT, ultrasound the works. This time we walked out with a diagnosis of gastritis and a small aneurism in her celiac artery. I mean no matter which way you look at it this was still a shitty hand, but at the very least we knew what kind of cards we were holding this time, we thought.
Monday, July 1, 2013
Cancer Warrior & Caregiver's Arsenal
- {Can be placed on port or picc lines they help kill the organisms associated with catheter-related bloodstream infections,
- keeping them always protected and clean.} Many hospitals are introducing these to prevent infection, especially in oncology and ICU where immune levels are low.