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Tuesday, January 21, 2014
It really has grown to bother me over the past year when I read that there's a "cure for cancer" and it's just being hidden by the medical community.
I'm pretty sure if there were a cure out there, it would be every marketer's dream and selling hand over fist, quicker then it was being manufactured.
In my opinion the people that are usually trying to sell you this mumbo jumbo nonsense are trying to replace it with whatever or whoever they're selling instead.
Let's see, if all it took was a $10 bottle of vitamins from your local health food store, some random baking stuff out of your pantry or rolling around in animal poop to be cured.
No one would have cancer!!!!
Because let me tell you if
Any of those things honest to goodness would cure my mom from this ravaging beast that will eventually take her from me.
Don't you think I'd be in my kitchen like Betty Crocker/The mad scientist baking brownies stuffed with ginkgo-biloba watching my mom high as a kite from her marijuana pills covered in horse poop (from the local horse track since I live in the city) eating them saying "The rabid squirrel made me do it!!!!"
(If you have no idea what I'm talking about refer back to my "Rabid Squirrel" story two blogs ago..)
In all seriousness and all kidding aside, I pray and have faith that soon with the strides that are being made in cancer research everyday, a real cure for all of our loved ones will soon be discovered.
And I won't have to subject my sweet mom to dancing naked in the rain, while singing the hokie pokie and balancing a spoon on her nose.
( Nobody try this at home, it's not really a cure to anything and we've never tried it, but it may actually be kind of funny. "Ok, what the hell, go ahead and try it and let me know how it works out!")
Monday, January 20, 2014
January 20th, 2014
When mom was diagnosed last December we were told chemo for her would be indefinitely every 2 weeks, until it stopped working, or she decided she no longer wanted it.
She hasn't really had any side effects aside from the fatigue and loss of appetite from the 4th-7th day.
And although she has some bad days, when she has good days they're great.
Well today will be Chemo #22 for mom, and as crazy & selfish as it may sound in the moment, I'm hoping for at least a hundred more....
Waiting with mom for chemo and she's feeling good, so good that's she's had 2 cups of coffee and eaten almost a whole bowl of laffy taffy's while we've been waiting.
One of things I've noticed since mom was told she has cancer is that she no longer has the filter most of us live our lives by.
She's always pretty honest whether you like it or not, yet somehow still seems to let everything roll right off her back, no longer taking life so seriously. Well that was the exact case tonight...
So mom was getting chemo while eating dinner at the same time, the young nurse who was orientating decided to sit down and chat with her.
Mind you I'm not really paying to much attention at this point because during chemo mom usually sleeps and I try to distract myself by reading.
When I hear the nurse say "God does everything for a reason and miracles do happen." Intrigued by what's to come next, I put down my book to listen.
She begins to tell mom about a patient she had who had been diagnosed with an inoperable brain tumor and chosen to seek out a second opinion.
Now with " miracles happen" being the opening line, what I assumed she was going to say next was that during that second opinion he had found out he had been misdiagnosed or that he had some radical treatment that had cured him.
You'd think right? Wrong!
Instead she asked us If we had heard around thanksgiving time of a blind woman and her husband dying in a fire.
It turned out that the husband was her patient with the brain tumor.
I said "I don't get it".
She said, " All this time time he thought what was going to kill him was the brain tumor, but what actually took his life was the house fire..
I looked at mom who looked utterly confused and I cringed and waited.....
Mom turns to her and saids "So is what your saying, not to worry to much about dying from stomach cancer because a miracle may occur where I die in a freak accident before then?
The nurse realized her story may not have come across exactly the way she intended it too and looked kind of embarassed.
Mom tried to put the nurse at ease and just smiled telling her not to worry too much about it because she was ready and when it's her time it's her time. While jokingly encouraging her not to become a motivational speaker anytime soon.
When as we're leaving mom smiles and saids " I'll see you in two weeks, that is if I don't get killed in some random accident before then.
Me, I said absolutely nothing and just thought to myself maybe from now on chemo time should be quiet time, and I should just stick to reading my book....
Saturday, January 18, 2014
I will continue to add and update this particular entry as I learn about new things that can benefit others in hope that it will help someone in some way.
Sharing is Caring!!!!
One of the biggest worries we have as caregivers is who will take care of our loved ones, as good as we do while we're at work.
Some of you may have taken a personal leave or just quit your jobs all together to stay home and do just that.
Did you know if you are your loved ones primary caregiver and they're on disability, the state you live in could possibly pay you to stay home and take care of them as their personal assistant. Contact your local Department of Aging for more information about obtaining a PA Package.
So went to the pharmacy today to pick up 5 prescriptions with a retail value of almost $600. Even with having Blue Cross/Blue Shield coverage, my out of pocket was still a little over $200.
Coincidentally a few days ago I had received a prescription discount card in the mail and it had just been sitting in my purse collecting dust.
I decided to ask the pharmacist if she took this kind of card, and she said "yes".
So I'm super excited to show you what I ended up spending...
You can't use both, only one or the other but you can definitely use the one that gives you the better price.
Attached the link below in case anyone's else is interested...
Added a pic of final cost in comment section.
Tuesday, January 14, 2014
January 14th, 2014
Being that my mom's middle eastern we grew up eating lots of Arabic food. But I married a Frenchmen/Chef who loves to cook with all of my favorite things like heavy cream, butter and wine which don't always agree with mom.
So I've gone back to her roots and started cooking Arabic food which seems to be a lot gentler on her stomach.
I found Dede Med's middle eastern food cooking channel on YouTube last year that I use all the time and just wanted to pass it on in case anyone's interested. So today I'll be making "Mujaddara" one of my mom's favorite dishes and crossing my fingers that it appeals to her and tastes like the one her grandma used to make.
So here's Dede Med's link for some yummy but stomach friendly recipes..
Monday, January 13, 2014
Sitting in the dentist office because mom has had a tooth ache since this morning and may need a tooth pulled.
Now the assistant is telling me we may need clearance from her oncologist first, if she ends up having to have it pulled. Has anyone else had this problem or are we the only lucky ones?
By the way this would be a lot less amusing if mom didn't look like the guy from Weekend at Bernie's. Thank god for her happy pills....
Saturday, January 11, 2014
Thursday, January 9, 2014
January 09, 2013
Have been up since about 5 this morning and was just starting to fall asleep when my mom woke me up. She said she felt like she couldn't breathe and wanted to go to the hospital. I started to get ready and she told me she'd just taken a Xanax and wanted to wait for it to kick in to see if it helped.
Which instinctively made me ask if she was feeling sick physically or emotionally, to which she responded emotionally, saying she feels like she's dying even though she isn't having any pain.
Then she said she just wanted me to sit with her until the feeling subsided, as I started to ask her a question she asked me not to speak, but just sit quietly next to her. So here I sit an 1 1/2 later staring at her, feeling sleep deprived and super exhausted while she folds laundry.